Just so You Know – The Obama Campaign Gift Registry is Bush’s Fault

You’ve all seen this by now. I know you have – Obama has an “Event Registry” on his campaign website where “in lieu of” a gift for your  kid’s birthday, you can have the honor of donating  to The One. Seriously.

It’s being mocked… everywhere – on blogs, Twitter, talk radio,  the office, the bus stop, the nail salon,  the McDonald’s drive through – everywhere.

Everyone agrees it’s outrageous, but can’t decide if it’s more disturbing or funny, or desperate, flailing, disgusting or just plain sad. Some embarrassed  libs are saying nuh-uh, that’s not real —it it it’s just a Faux News lie – I read it on Snopes,,,

But no, look – it’s for realz:

Yeah, 984 comments, and probably more by the time this post is up. I haven’t read every single one, but I can tell you that the vast majority of the comments I did read on the President’s own campaign website, were negative.

Some sample comments:

Is this what the office of the President of the United States has come to? Pandering for wedding and birthday money?

Yes, it has, but stay tuned — he has quite a way to go before he hits bottom. Should be amusing.

Funerals will be targeted next, a donation in lieu of flowers

He still has room to hit bottom…..thats scary.

its like when Wile E Coyote falls off the cliff

Not long before they start hitting up kids for their tooth fairy money.

In the revised definition of tawdry, the new entry is “Barack H. Obama.”

The man embarrasses our Republic and debases the Office of the Presidency.

Just like team Obama’s Attack Watch,  Truth Team, and their creepy, overly familiar fundraising letters, this latest brilliant campaign scheme is blowing up in their faces.

Even liberals are having trouble defending it. I’m sure the wiz kids at Media Matters are scraping something together as we speak, but I thought I would speed things up a bit just for laughs, because I think we can all guess how it will go.

Of course, the practice of soliciting for donations in lieu of /birthday/ wedding/anniversary gifts began under the current President’s predecessor.

It was called “Operation Wedding Gift Receiver” and the eeeevil  Boooosh team was very sneaky about it.

I searched the internet Wayback Machine, and found this old webpage from Bush’s 2004 campaign website. Look closely:

Did you see it? Did you see it?

“Host a party for the President”

What do you do at parties? Give gifts? Gifts of money, perhaps? Gifts of money to the Bush campaign???

The fatally flawed practice of gift-walking began under Bush.

I rest my case…..

SEE AlSO:

Be Sure Your RIGHT, Then Go Ahead: Just Another Sleazy Day In Obama Land …for photoshop fun.

White House Dossier: Top Ten Rejected Obama Fundraising Schemes

Linked by Doug Ross, thanks!

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Saturday Movie Matinee: “Follow The Ideology”

Via Ace of Spades HQ: Bill Whittle on Fast & Furious:

Lee Doren: Fast and Furious is a Disgrace:

Fast and Furious: Barack Obama’s Bloodiest Scandal and the Shameless Cover-Up
http://www.amazon.com/Fast-Furious-Bloodiest-Shameless-Cover-Up/dp/1596983213
By Katie Pavlich

Via : A primer on Fast and Furious for studiously clueless Soledad O’Brien and Rachel Maddow:

SEE ALSO:

John Nolte, Big Journalism: Time For Super PACs to Tell the Truth About Fast & Furious

 

Via Dick Morris: Obama’s Emerging Strategy!:

His game plan is becoming clear…and what we must do to counter it…

‘s Zo Nation: The Blamer In Chief: Obama Blames Everyone Other Than Himself and His Failed Liberal Policies:

Liberals always get their way, and Zo thinks that’s why the world is in an economic crisis. Hear how Obama is distorting the facts about the budget deficit and the economy in order to hide the truth about his record.

‘s Trifecta: Left and Right Unite to Oppose President: Obama Gets Thrown Unger:

Going viral on Youtube: Sharks attack whale:

About 100 sharks line 400m of shoreline to feed of a devoured whale. Some were tiger sharks, others just reef sharks. Intriguing in the most horrific sense.

See Also:

Help Needed in Unlocking Lifesaving Treatments for Rare Diseases (Video)

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Help Needed in Unlocking Lifesaving Treatments for Rare Diseases (Video)

Today’s featured video is about a baby girl who was diagnosed with GM-1 Gangliosidosis.

GM1 gangliosidosis is an inherited lysosomal storage disorder that progressively destroys nerve cells (neurons) in the brain and spinal cord. Some researchers classify this condition into three major types based on the age at which signs and symptoms first appear. The three types include: classic infantile (type 1), juvenile (type 2), and adult onset or chronic (type 3). Although the three types differ in severity, their features can overlap significantly. Because of this overlap, other researchers believe that GM1 gangliosidosis represents a continuous disease spectrum instead of three distinct types. This condition is caused by mutations in the GLB1 gene and is inherited in an autosomal recessive fashion.[1]

WEBSITE: http://www.hope4fiona.org
MOBILE DEVICES: http://m.hope4fiona.org
HOPE 4 FIONA YOUTUBE CHANNEL: http://www.youtube.com/user/hope4fiona/featured

Little Fiona has type 1, the most severe form of GM1 gangliosidosis, diagnosed by six months of age.

Infants with this form of the disorder typically appear normal until their development slows and muscles used for movement weaken. Affected infants eventually lose the skills they had previously acquired (developmental regression) and may develop an exaggerated startle reaction to loud noises. As the disease progresses, children with GM1 gangliosidosis type I develop an enlarged liver and spleen (hepatosplenomegaly), skeletal abnormalities, seizures, profound intellectual disability, and clouding of the clear outer covering of the eye (the cornea). Loss of vision occurs as the light-sensing tissue at the back of the eye (the retina) gradually deteriorates. An eye abnormality called a cherry-red spot, which can be identified with an eye examination, is characteristic of this disorder. In some cases, affected individuals have distinctive facial features that are described as “coarse,” enlarged gums (gingival hypertrophy), and an enlarged and weakened heart muscle (cardiomyopathy). Children with GM1 gangliosidosis type I usually do not survive past age 2.

Type II GM1 gangliosidosis consists of intermediate forms of the condition, also known as the late infantile and juvenile forms. Children with GM1 gangliosidosis type II have normal early development, but they begin to develop signs and symptoms of the condition around age 18 months (late infantile form) or 5 years (juvenile form). Individuals with GM1 gangliosidosis type II experience developmental regression but usually do not have cherry-red spots, distinctive facial features, or enlarged organs. Type II usually progresses more slowly than type I, but still causes a shortened life expectancy. People with the late infantile form typically survive into mid-childhood, while those with the juvenile form may live into early adulthood.

The third type of GM1 gangliosidosis is known as the adult or chronic form, and it represents the mildest end of the disease spectrum. The age at which symptoms first appear varies in GM1 gangliosidosis type III, although most affected individuals develop signs and symptoms in their teens. The characteristic features of this type include involuntary tensing of various muscles (dystonia) and abnormalities of the spinal bones (vertebrae). Life expectancy varies among people with GM1 gangliosidosis type III.

There is currently no cure or treatment for these diseases. In the United States,  research in the areas of enzyme replacement and gene therapy for GM1 gangliosidosis is ongoing but has not advanced to human trials. What’s the hold up? Why isn’t the research advancing? There’s an urgent need for a cure. The children who live with this disease are losing physical and cognitive abilities by the day. I know.

GM1 trials on humans are still years away.

There are currently some bills working their way through Congress that to help unlock lifesaving treatments:

HR 3737 the Unlocking Lifesaving Treatments for Rare Diseases Act
http://www.curetheprocess.org/ultra_act

ULTRA S 606/HR 3059 the Creating Hope Act
http://www.congressweb.com/cweb2/index.cfm/siteid/KAKI/action/TakeAction.Cont…
(In “Affiliation” box write: National Tac-Sach and Allied Disease)

H.R. 4132: FAST Act

http://www.govtrack.us/congress/bills/112/hr4132

 Congressman Cliff Stearns (R-FL), a senior member of the House Energy and Commerce Committee, says that “in 1992, the FDA created an Accelerated Approval process to make new drugs available earlier to treat serious diseases and fill an unmet medical need based on a surrogate endpoint. However, the modern FDA’s approval rate for drugs and medical devices has slowed immensely.  Last March, Rep Stearns along with Rep. Ed Towns (R-NY) offered H.R. 4132, the Faster Access to Specialized Treatments (FAST) Act. 
This measure codifies much of the Accelerated Approval regulations into statute and modernizes the program to reflect the amount of medical and scientific innovation that has occurred in the past 20 years.”  This streamlined Accelerated Approval pathway also will help the rare disease community.

“A rare disease in the United States is a condition that affects fewer than 200,000 people, and according to the FDA about 30 million Americans are afflicted with a rare disease,” said Stearns.  “Because the diseases are rare, there is a disparity in access to drugs and treatments for these rare diseases.  In addition, under normal market conditions there is no incentive for the pharmaceutical industry to develop and market drugs for patients suffering from rare and ultra-rare diseases.  That is why these drugs are called ‘orphan’ drugs.”

Late last year, Stearns and Towns offered H.R. 3737, the Unlocking Lifesaving Treatments for Rare-Diseases Act (ULTRA), to promote the discovery and development of safe and effective drugs and treatments to prevent, diagnose, or treat rare and ultra-rare diseases.  Said Stearns, “After getting input on ULTRA, we developed H.R. 4132 and we are working with the Energy and Commerce Committee leadership on adding it to the Prescription Drug User Fee Act (PDUFA) V, which will be considered by the Committee.”

The Creating Hope Act Passed in the House on May 31. 

WASHINGTON, D.C.— The U.S. House of Representatives tonight approved a bipartisan provision authored by Congressmen Michael McCaul (R-TX) and G. K. Butterfield (D-NC) that would incentivize pharmaceutical companies to develop new drugs for children withrare pediatric diseases, such as childhood cancers and sickle cell disease.  H.R. 3059, The Creating Hope Act of 2011, was passed as part of H.R. 5651, which reauthorizes various Food and Drug Administration (FDA) user fee programs for prescription drugs and medical devices.  If the Senate approves the measure, it would go to the president for his signature.

“There aren’t many bills that pass the House that give instant hope to so many people in need.  This one does,” said Congressman McCaul, founder and chairman of the bipartisan Congressional Childhood Cancer Caucus.  Countless numbers of children and their families who are unable to treat their disease because of a lack of adequate treatments are counting on this legislation, as will many more children who may one day learn that they have a life-threatening illness.  The Creating Hope Act offers the best chance of encouraging pharmaceutical companies to develop treatments for children at no cost to taxpayers.”

Hope is something in very short supply for parents of children with these rare,  fatal diseases. You can help by contacting your members of Congress to support the above legislation.

Why my sudden  interest in this subject, you ask? Simple.

I know someone who was recently diagnosed with GM1 Gangliosidosis,  type 2.

Meet Chris, my youngest:

Please share:

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Linked by Ace of Spades HQ and Innocent Bystanders, and  Maggie’s Notebook, thanks!

UPDATE:

Obama Signs FDA User Fee Legislation Bringing Hope to Rare Disease Patients
EveryLife Foundation for Rare Diseases Applauds Congress for Including Provision to Empower the FDA to Accelerate Approval of Lifesaving Treatments

July 10, 2012, Washington, DC – Yesterday President Obamasigned into lawThe Food and Drug Administration Safety and Innovation Act (FDASIA), S. 3187, bipartisan legislation that will spur the development of lifesaving treatments for 30 million Americans suffering from rare diseases.

“We are thrilled the language to improve access to the FDA’s Accelerated Approval pathway for rare diseases has been included in FDASIA,” said Emil Kakkis, MD, President, EveryLife Foundation for Rare Diseases.  “We wish to thank Representatives Cliff Stearns (R-FL) and Ed Towns (D-NY) for being champions for the rare disease community.”

Stearns and Towns first introduced Unlocking Lifesaving Treatments for Rare Diseases Act (ULTRA) to empower FDA to use all the science available for allowing surrogate endpoints in clinical trials for rare diseases to determine whether a drug is working, significantly decreasing the development time and cost.  Stearns and Towns later introduced Faster Access to Specialized Treatments (FAST) Act that improved Accelerated Approval for life-threatening diseases while maintaining high safety and efficacy standards.

FDA’s Accelerated Approval has been successful in getting treatments approved for cancer and AIDS patients, but has been essentially unavailable for rare disease treatments.  There are currently fewer than 400 FDA-approved treatments for nearly 7000 rare diseases.  Investment and interest in development will surge for rare diseases if there is access to the Accelerated Approval pathway.

“We would not have been successful if it were not for the great work of Energy and Commerce Chairman Fred Upton (R-MI), Biotechnology Industry Organization (BIO), and more than 300 patient organizations that advocated for improving the FDA’s regulatory process,” added Kakkis.